Returning Fall 2021!
More details coming soon!
“Bottoms Up for Bubba” is an annual golf cart poker run that continues to grow and help families with rare diseases, including rare cancers. It began in 2017 to help "Bubba," who has an ultra-rare and life limiting, genetic disease, to travel to receive medical care and participate in research with world renowned scientists.
Traveling to medical and scientific conferences and attending consultations with these researchers provided his parents the extraordinary opportunity to develop a care plan to help ensure optimal care is attained for him.
Additionally, ever since being connected with other patients, parents, caregivers, and world-renowned researchers in the field of Peroxisomal Disorders, hope is ever-increasing for families like Bubba's!
In 2019, through the generosity of the Surfside Beach and surrounding communities, "Bubba" and his parents were able to help other children and their families have this chance to find hope too. Through our community we have been able to help other children and their families to meet world-renowned scientists, and other families like their own for the first time.
In 2020, in honor of Bubba, his parents created Bubba’s Light to continue helping other children and hopefully bring a little light to these families when faced with such a devastating and rare diagnosis.
Thank you to all who have and continue to support this annual event!