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RESOURCES
Rare Disease Resources
Rare Disease Facts
View or download the file below to learn and share about rare disease facts.
Helpful Websites
Toolkits and Books
Educational and Advocacy Resources
Helpful websites, materials and more
South Carolina
United States
Global
Peroxisomal Disorder Resources
Patient Advocacy Organizations
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Adrenoleukodystrophy (ALD or X-ALD)
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Refsums Disease
Rhizomelic chondrodysplasia punctata
Helpful Publications, Videos and Materials
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Deafblind Resources
Helpful Organizations and Links
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Materials and Books
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A Family’s Guide to Interveners
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62-page booklet ​
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Preschool Transition Planning Checklist (PDF)
Caregiver Resources
Helpful publications, videos, materials and more.
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HELP CARD PDF to download, print and share!
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The Rare Caregiver Presentation Recording
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